Life with Arachnoiditis: Education, Research, Support & Hope
Arachnoiditis, Epidural Fibrosis, Failed Back Surgery Syndrome & Related Spinal Disorders
Copyright & Non Profit Organization status in process


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Co-Founders: 
Jon McHann, TN
Karen Kovacik, CO
Cindy Hellman, FL

Meet our Co-Founders

Member Contact Information

People listed below are interested in corresponding with others touched by Arachnoiditis and related conditions. EVERYONE IS WELCOME!  Those posted below DO NOT represent the interests of LWA. If you do not wish to be contacted by someone listed here, please block their email address so we may provide a fair posting for everyone.

New members added in August: Garry Harvey, Marc Herbener, Cheryl Burnett, Vickie C, Connie Keeler, Pet Campbell, Suzie of CA, Carl Fisher, Alex Parou, Joe White, Carla Rae Caswell, Traci Daniels, Patricia Uhl, Dr. Grace Brame,

**Please check the listings for these new members below. Some are asking for help! We are working on a way to let each other know what we need so we can help each other more consistently.  Please bear with us as we make these transitions.

Anderson, Andy
Email  andya321@gmail.com
FL - Age 25 - Family member
Arachnoiditis

Anderson, Leona
Email admissions123@gmail.com
MS - Age 49 - Spouse, Arachnoiditis
See the blog! She needs support!

Anson, Tanya
Email  t.anson@bigpond.net.au
NSW, Australia - Age 31
Arachnoiditis & Arachnoid Cyst

Airozo, Rita
Email ritaairozo@yahoo.com
CO - Age 54, Chronic Arachnoiditis
Needs support

Alubicki-Freymuth, Linda
Email linda_freymuth@yahoo.com
CT - Age 53, Arachnoiditis, FBSS,
spondylilothesis
Uncontrolled pain, needs PM referral,
needs support, please email!

Baker, Thomas
Email bestbee@msn.com 
Family Member with Arachnoiditis

Bee
Email  bestbee@msn.com
Sister has Arachnoiditis

Brame, Dr. Grace
Email  grace@gracebrame.com
DE - Friend with Arachnoiditis
See blog - needs input

Brosius, Diane
Email rozied@verizon.net 
PA - Adhesive Arachnoiditis

Bugnatto, Theresa
Email tinkybell803@hotmail.com
CA - Age 43 - Arachnoiditis
Posted my story on your site at Facebook
(see Discussions) Please refer to it.

Bunce, Katherine
Email bunceybunce@btinternet.com
United Kingdom - Age  30
Thoraco-Lumbar Arachnoiditis &
Communicating Hydrocephalus
(requests support - see blog)

Burnett, Cheryl
Email burnettnowak@embarqmail.com
FL - Age 50 - Arachnoiditis

Campbell, Pet
Email petcampbel@gmail.com
FL - 53 - Spouse with
Arachnoiditis, Osteomyelitis, Diskitis

Caswell, Carla Rae Caswell
Email snuggles@rangeweb.net
WY - Age 54 - Adhesive Arachnoiditis

Carter, Tim
Email timcarter12345@hotmail.com
KY - Age 46
Fibromyalgia, Chronic Groin Pain, IBS

Cassidy, Richard
Email rwcme@microsoft.com 
Email richard_cssdy@yahoo.com 
OK - Age 48
Failed Back Syndrome

Cherozzi, James
Email cherozzi1@comcast.net
PA - Age  54 - arachnoiditis
Seeks suggestions on coping without
medication to be able to work 

Collins, Lee
Email leecol211@yahoo.com
NY - Age 54
Scar tissue, adhesions?, chronic pain
and radiculopathy
Seeks info on diagnosis and care

Crumley, Lisa
Email lisacrumley32@yahoo.com
MI - Adhesive Arachnoiditis

Curtis, Juliette
Email curtisjuliette@yahoo.com
OR - Age 38 - Arachnoiditis
Mother with an 8 yr old son

Daniels, Traci
Email tracee42870@yahoo.com
OH - Age 39 - Arachnoiditis

Dargle, Jean
Email darglep@aol.com
VA - Age 41 - Arachnoiditis

Davidson, John
Email scouser@gmail.com
New Zealand - Age 65 - Arachnoiditis

Dru
Email  drucilla_e@yahoo.com
TX -  Family member is 59
Adhesive arachnoiditis
Seeks provider suggestions near
Wichita Falls, TX

Duffy, Tammy
Email tamduff@sbcglobal.net
TX - Age:  47
Arachnoiditis, Fibromyalgia

Englert, Audrey
Email  audwood65@hotmail.com
CA - Age 67
Adhesive arachnoiditis (Lumbar)
Seeks info re progression AA


Falcone, Paula DeCarlo
Email buffy_carlos@yahoo.com
NC - Adhesive Arachnoiditis

Fisher, Carl
Email c1fisher@hotmail.com
OH - Age 48 - Arachnoiditis

Gillen, Tom
Email  tgillen4@aol.com
FL - Spina Bifida, undiagnosed AA

Green, Deb
State:  Michigan
Age:  48 - Friend with Arachnoiditis

Haney, Teresa
Email thaney2005@yahoo.com
OH - Adhesive Arachnoiditis

Harvey, Garry
Email garryharvey@triad.rr.com
NC - Age  63 - Arachnoiditis

Herbener, Marc
Email herbener@att.net
KY - Age 53 - Arachnoiditis

Hellman, Cindy
Email cahellman@earthlink.net
FL - Adhesive Arachnoiditis

Holt, Cindi
Email barginmom08@centurytel.net
AL -Cervical AA - Age 48

Keller, Lynettee
Email lynnetteekeller@yahoo.com 
WA - Adhesive Arachnoiditis

Lancaster, Mitzy 
Email mitzya@kitcarson.net
NM - Age  49 - Diagnosis:  FBSS

Levi, Sandi
Email cme4get@aol.com
AZ - Age 70 - Arachnoiditis
Seeks support

Lyman, Anna
Email lymantis@verizon.net
VA - Age  52 - Diagnosis:  Arachnoiditis
Needs info, stimulator or pump,
How do others cope?

 

Lyons, Harriet
Email crowskid@comcast.net
PA - Age 44 
Failed Back Syndrome, Degenerative
Disc Disease, Arthritis

Keeler, Corinne "Connie"
Email cmkeeler@camcast.net
TN - Age 54 - Arachnoiditis

Kovacik, Karen
Email kkovacik12@netzero.com 
CO - Arachnoiditis
Undergoing alternative IV therapy
since 11/08

Lockley, Rebecca
Email  lockleyhouse@yahoo.com
MS - Age 34 - AA

MacLeod, Sarah Michelle (Mchann)
Email  sarah_belladonna@hotmail.com
Hawaii - Age 25
Family Member with AA

Mayfield, Donna
Email  suger0301@aol.com
LA - Age 48 - Arachnoiditis, Fibromyalgia
Seeking support - please email her!

McCrane, Bonnie
Email  jmc18@bellsouth.net
FL - 55 -  Adhesive Arachnoidits
Needs provider near Palm Beach County

McHann, Jon
Email  jon.mchann@gmail.com 
TN - Adhesive Arachnoiditis

McHann, Juliann Azariah
Email:  phrekkels@yahoo.com
TN - Spouse/Caregiver

McHann, Preston
Email  The_McHann_Twins@yahoo.com
PA - Age 17
My father, Jon McHann has AA

MEIJERS, TALIS 
Email talismeijers@bellsouth.net
LA - Adhesive Arachnoiditis

Morgan, Lisa - RN
CA - Sucessfully treated for 
Arachnoiditis EARLY. Contact
through LWA

Murphy, Beverly
FL - Age 56 - FBSS, Arachnoiditis
Neuropathy
bevtmurphy@aol.com
 
Seeks support, please email

Nichols, Donna
Email fivenich@comcast.net
TN - Age 53 
Husband with arachnoiditis
Seeks support and information

Parou, Alex
Email parou254@comcast.net
PA - Age 58 - Arachnoiditis, rupture disc

Petrovich, Fr Stephen
Email ukiebishop@gmail.com
OH -  Age 58 - Adhesive Arachnoiditis
Needs advise on long term care, social worker
PLEASE WRITE!

Pirrello, Diane
Email  dpirrello@yahoo.com
IL - Adhesive Arachnoiditis

Pontel,  Debbie Pontel
Email dpontel@yahoo.com
Wisconsin - Age 54
Fibromyalgia, DDJD, undiagnosed Arachnoiditis


Poulin, Christine
Email radiocorcoran@hotmail.com
ID - Age 43 - Adhesive Arachnoiditis

Rabbette, Marie
Email marierabbette@yahoo.couk 
United Kingdom - Age:  50
Adhesive Arachnoiditis - Appreciate info on case law & any help/guidance.

Regine
Email  heuserre@yahoo.de
Germany - Age  44
Adhesive Arachnoiditis after lumbar tap

Rothgeb, Steve
Email mulefool13@roadrunner.com
NY - Age 53 - arachnoiditis, stenosis
Seeks support, please email

Sanderson, Hollie
Email crystalblu76@aol.com
FL - Age 32 - Spinal Adhesive Arachnoiditis
Needs OUR support!  PLEASE WRITE!

Sedmak, Charles
Email:  cwsmac@aol.com
CO -  Age 49
Diagnosis:  Spinal Cord Injury due to 
Major Trauma - "A Man with a Plan"

Spickler, Carla
Email cjspickler@comcast.net
SC - Age 48 - Arachnoiditis

Stevens, Larry C.
Email larrystevens08@comcast.net
CA - Age 60

Suzie
Email healthinfo2468@aol.com
CA - Arachnoiditis

Tomlinson, Simone 
Email:  simone_d_t@sky.com
Age 25 - FBSS, CES, DDD, CDD, arthritis

Tomczek, Donna L. Tomczek
Email dtomczek@cox.net
CA - Age 63 - Arachnoiditis
Seeks info on disease, research,
new treatment

Uhl, Patricia
Email yuletide@echoes.net
PA - Age 62 - Arachnoiditis, 
Failed Back Surgery Syndrome

Weinraub, Alan 
Email tatonka_usn@hotmail.com
CA - Age 37
DDD, Facet Hypertrophy, Epidural Fibrosis
FBSS - Please write and offer info you can.

Vermeiren, Louise Carbonneau
Email vermeirenart@gmail.com
Ontario Canada - Age 50's
Arachnoiditis - see www.arachnoiditiscanada.com 

Vickie C.
Email  macpeanut@gmail.com
NV - Age 45 - Probable Arachnoiditis

Warner, Sherry
Email gramms328@aol.com
IN - Age 42

White, Joe
Email jgtxjoe@aol.com
PA - Age 50 - Lumbar Adhesive arachnoiditis

Woody, Kimberly
Email  kwoody128@yahoo.com
MI - Age 38 - Mother has arachnoiditis
Looking for providers & any help!

Yurechko, John
Email John.Yurechko@gmail.com
VA - Age  61 -  Arachnoiditis

Life with Arachnoiditis: Education, Research, Support & Hope
Arachnoiditis, Epidural Fibrosis, Failed Back Surgery Syndrome & Related Spinal Disorders
Copyright & Non Profit Organization status in process
Temporary Mailing Address:  P O Box 1202, South Fork, CO 81154